Airplane Flights and Airports

I have a bunch of family in Virginia, and have both driven and flown many times. My flight was supposed to leave at 6 am. No I did not schedule this time, my flight was changed, and let me tell you that is way too early in the morning….We got up at 3:15, left the house at 4:10 and arrived at the airport at 5:15. Luckily for me I have the TSA check so I can go faster through security.

I walked at a descent pace to my terminal and within a couple of minutes we were boarding the plane. I notice one of the pilot crew guys looking around the gauges with a flashlight, great maintenance problem. So we get that fixed and now Atlanta wants us to wait, ugh, I have a one hour layover in Atlanta, ok should be fine. We are on the tarmac and the pilot comes across again, we are 4th in line but Atlanta wants us to wait until 7:00, what, that is 8:00 Atlanta time so now we are pushing it a bit. So we finally get started, lots of clouds so there is lots of turbulence. That hurts the neck, chairs are not comfortable either. I will make it.

So now I have to run to the train to get all the way from B10 to D5 at Atlanta airport, the first train is too full, have to wait on another one. My legs are both numb and my head is killing me. But wait, the cutest little boy is standing in front of his Dad, I say “get ready, we are about to go really fast, he looks up at me rolling his eyes, and the train takes off. I say hold on, now we are going to stop really fast, he looks up at me and makes me smile, made my morning.

So get up in the next plane from Atlanta to Virginia and it is a good flight, great attendants, pampering me, not sure why, maybe someone told them I needed some love, it helped me endure the pain the rest of the way. So glad I won’t have to drive for the next 2 weeks…..

Day by Day

It is funny how each day goes by just as fast now as when I worked. What do I do all day? It seems like I haven’t done anything but it is time for Mike to call saying he is on his way. Mike, my husband, what would I do without him…. that is another story for another day.

I think that most of my day is now engrossed in what in the world is happening to me, where am I going, my life is so different now than just a few years ago.

I sleep no less than 10 hours a day and usually take at least one power nap, usually after reading too much, and then another nap for a few hours in the afternoon. Sounds like I am a senior now…. believe me this is not by choice, I would give anything to be working 12 hours a day instead of sleeping it.

In the last week my symptoms are changing…besides just having regular fibro and arthritis pain I am having ringing in my ears, every day, Mike says I am talking in my sleep, that can be bad….. the left side of my neck feels different, something going on there but I can’t explain it. The pain in my hands is getting almost unbearable at times, sometimes I just get a shooting pain in one finger, so freakin weird. And let’s not forget the jumping limbs are back, yay!!

Cerebellum

The cerebellum is the second largest part of the brain. It sits below the posterior (occipital) lobes of the cerebrum and behind the brain stem, as part of the hindbrain. Like the cerebrum, the cerebellum has left and right hemispheres. A middle region, the vermis, connects them. Within the interior tissue rises a central white stem, called the arbor vitae because it spreads branches and sub-branches through the hemispheres. The primary function of the cerebellum is to maintain posture and balance. When we jump to the side, reach forward, or turn suddenly, it subconsciously evaluates each movement. The cerebellum then sends signals to the cerebrum, indicating muscle movements that will adjust our position to keep us steady.

At the Beginning…

I am what a friend calls “one big hot mess!” In 2012 I started having high blood pressure, went to Doctor and found out I was post-menopause when taken off of birth control pills. Within 2 months I started having pain everywhere, no one could touch me, I couldn’t lay down without being in pain, couldn’t sleep more than a couple of hours a night. Then my neck started bothering me, we expect these things when we sit in a chair for 10 hours a day crunching numbers. I was the senior accountant for horse race track/casino. Then I started losing strength in my left arm, within a month of the pain I couldn’t lift a coffee cup. As they were running every test imaginable and not finding anything wrong they sent me to a Rheumatologist and Neurosurgeon. So now I am diagnosed with Fibromyalgia, no RA, no Lupus, degenerative disc disease in shoulder, neck, back, hip and Osteoarthritis. Carpal tunnel, bilateral, steroids shots, frequently.

December 2012 Cervical fusion C5-6-7. Went back to work 9 weeks later, Doctor would not release me, he knew what I did for a living. June 2013 fired, at will state so they made up a reason and let me go.

Worked 4 different jobs between June 2013 and March 2017, was fired from the last 2 jobs because I wasn’t following procedure, didn’t know how to plan my time, was not familiar with accounting procedures. And so the spiral began.

I counted how many times I went to Neurosurgeon and to pain clinic from the beginning in November 2012 to now – 22. Wonder if one of these was the reason, hmmm.

Had extreme pain in my lower back, went to Neurosurgeon and he said you know when you have more of a problem than normal, 2 synovial cysts on L4, one on each side. They were removed. Then my neck collapsed above previous fusion in neck so they pulled my neck back in place and fused C4 to C5.

So here I am, less than 6 years after diagnosis, degeneration and Osteoarthritis and the medications have me not wanting to do anything, tired all the time, can’t get comfortable, you know the story. Fibro fog is unbelievable, or is it the medication.

I go to my regular Doctor but see one of the APRN’s instead, fresh eyes. I am walking sideways I tell her, have no entergy or strength, exhausted after taking shower. Neck feels like it is on a pin. MRI’s ordered – Lumbar, cervical and brain, check my walking, gait issues, check strength in both legs, loss of strength. Results: Bulging discs are getting more pronounced in back, neck looks ok, brain, huh, this is new, benign-appearing pressure-related atrophy of left cerebellum 1.3 x 4.4 x 2.47, appears to be a benign arachnoid cyst.

Go to see Neurosurgeon, this is a new one, my previous doctor moved out of state to take a teaching job, new guy comes in and asks me if I am here to get a shot, we say no, I am here because of the cyst on my brain, he looks at my MRI, pulls it up and scrolls around the results real quick, that is nothing, you don’t need surgery, anything else I can do for you, my husband and I are shocked, according to Neurosurgeon we don’t need to come back, no need for follow up or additional MRI’s.

So now I am waiting for appointment with Neurologist, the first appointment was rescheduled, they don’t seem to see any urgency in getting me in, although the APRN at pain management, trying not to act too worried, glances at the MRI of my brain, looks at me and says “find yourself a good Neurosurgeon. We can’t help you with that problem, keep appointment with Neurologist, you are going to need him, where would you like for us to work on, upper or lower back?” So appointments set up to go back to pain management and we begin the process of finding a Neurosurgeon in another town or state. And waiting to see Neurologist.