At the Beginning…

I am what a friend calls “one big hot mess!” In 2012 I started having high blood pressure, went to Doctor and found out I was post-menopause when taken off of birth control pills. Within 2 months I started having pain everywhere, no one could touch me, I couldn’t lay down without being in pain, couldn’t sleep more than a couple of hours a night. Then my neck started bothering me, we expect these things when we sit in a chair for 10 hours a day crunching numbers. I was the senior accountant for horse race track/casino. Then I started losing strength in my left arm, within a month of the pain I couldn’t lift a coffee cup. As they were running every test imaginable and not finding anything wrong they sent me to a Rheumatologist and Neurosurgeon. So now I am diagnosed with Fibromyalgia, no RA, no Lupus, degenerative disc disease in shoulder, neck, back, hip and Osteoarthritis. Carpal tunnel, bilateral, steroids shots, frequently.

December 2012 Cervical fusion C5-6-7. Went back to work 9 weeks later, Doctor would not release me, he knew what I did for a living. June 2013 fired, at will state so they made up a reason and let me go.

Worked 4 different jobs between June 2013 and March 2017, was fired from the last 2 jobs because I wasn’t following procedure, didn’t know how to plan my time, was not familiar with accounting procedures. And so the spiral began.

I counted how many times I went to Neurosurgeon and to pain clinic from the beginning in November 2012 to now – 22. Wonder if one of these was the reason, hmmm.

Had extreme pain in my lower back, went to Neurosurgeon and he said you know when you have more of a problem than normal, 2 synovial cysts on L4, one on each side. They were removed. Then my neck collapsed above previous fusion in neck so they pulled my neck back in place and fused C4 to C5.

So here I am, less than 6 years after diagnosis, degeneration and Osteoarthritis and the medications have me not wanting to do anything, tired all the time, can’t get comfortable, you know the story. Fibro fog is unbelievable, or is it the medication.

I go to my regular Doctor but see one of the APRN’s instead, fresh eyes. I am walking sideways I tell her, have no entergy or strength, exhausted after taking shower. Neck feels like it is on a pin. MRI’s ordered – Lumbar, cervical and brain, check my walking, gait issues, check strength in both legs, loss of strength. Results: Bulging discs are getting more pronounced in back, neck looks ok, brain, huh, this is new, benign-appearing pressure-related atrophy of left cerebellum 1.3 x 4.4 x 2.47, appears to be a benign arachnoid cyst.

Go to see Neurosurgeon, this is a new one, my previous doctor moved out of state to take a teaching job, new guy comes in and asks me if I am here to get a shot, we say no, I am here because of the cyst on my brain, he looks at my MRI, pulls it up and scrolls around the results real quick, that is nothing, you don’t need surgery, anything else I can do for you, my husband and I are shocked, according to Neurosurgeon we don’t need to come back, no need for follow up or additional MRI’s.

So now I am waiting for appointment with Neurologist, the first appointment was rescheduled, they don’t seem to see any urgency in getting me in, although the APRN at pain management, trying not to act too worried, glances at the MRI of my brain, looks at me and says “find yourself a good Neurosurgeon. We can’t help you with that problem, keep appointment with Neurologist, you are going to need him, where would you like for us to work on, upper or lower back?” So appointments set up to go back to pain management and we begin the process of finding a Neurosurgeon in another town or state. And waiting to see Neurologist.

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