My husband and I have travelled almost every year since we have been together. He is a big baseball fan so wherever we go we try to see a MLB game and go to the famous baseball fields. Me, I like the artsy stuff, galleries, flea markets, zoos and aquariums. We are kind of the tourist type when we get there, not the big camera sitting on your chest type, we just think that the best way to tour is to take a mass transit, if possible, most big cities have them, and walk.

We live in the US and have walked Boston, Chicago, New Orleans, St. Louis, San Antonio, Salem, Massachusetts, Memphis. Love traveling…..

A few years ago we travelled from the middle of the US (Arkansas) to Grand Canyon, spent a full day there. If you have never seen the Grand Canyon you must go, it is a sight to see. We went to the petrified forest and checked it out also. There is a driving tour there where you can drive and park to take pictures, pretty cool.

Then on to Riverside CA, have family here so we were able to set camp up in a cool house and cook, eat and sleep for a lot less expensive than doing the motel thing. We watched baseball games in all of the surrounding cities, San Diego, Los Angeles, Anaheim. It was super hot for the games but I always managed to find a fan and a place to stand for the game, way to hot to sit in the sun and I always was able to find a tv with my fan so I didn’t miss anything.

On the way back we travelled the southern border, we stopped in Tuscan to see my husbands Aunt, Uncle, Cousin and wife, a short visit with them and out to eat dinner and head to motel. New Mexico took forever because border patrol was looking for someone but when we stopped for the night we managed to find a small restaurant with the most awesome food, what a treat, then on to San Antonio for a few days over the Fourth of July, we stayed in a beautiful motel on the river for 3 days and walked every day down the river walk.

And finally it was over, we drove to Dallas to see my cousin since she lives on the way, and that ended the most memorable trip with my small family.

A 14 day trip with my husband, stepson and a full Jeep Grand Cherokee. Why is it that when we travel we feel like we have to take all of our worldly possessions with us? And then my stepson had to do a class so with everything else we had to have the laptop, energy for the laptop and a hotspot.

Cerebral arachnoiditis

Cerebral arachnoiditis: Cerebral arachnoiditis affects the membrane surrounding the brain, and often causes intense headaches.

After reading article in Medical News Today, Arachnoiditis: Symptoms, diagnosis and outlook Last reviewed Fri 2 February 2018 By Zawn Villines, this is the type of arachnoiditis that I have. It was involuntarily put in between my brain and base of my neck while receiving a steroid shot for pain in my neck. I had already had a cage put around C4-C5 after my neck collapsed over the fusion that I had 5 years previously on C5-C7.

I have no curvature of my neck anymore, the swelling in my back, where it meets my neck, is extreme, as is the swelling in both my left and right ankles. My right side swells more than my left.

I walk with a shuffle, mostly to the left, like I am always drunk. I was having extreme brain pains in the back of my head until put on a medication that seems to be keeping them under control.

I get severe back pain if I do any lifting, pushing, pulling, no house cleaning, no putting up dishes where I have to bend over. If I do this I have extreme back spasms and have to medicate myself further, which makes it where I can do nothing other than sit in my recliner, with a heating pad, in pain…. I am talking about over the top 9-10 type pain….

So with that being said I don’t do any housework, I do very little laundry or dishes, I get to help cook meals for my husband and stepson, I used to be an awesome cook, now not so much….

Something frozen that gets thrown in boiling water or in the oven. Spaghetti or ravioli, ugh, we are so tired of eating the same old thing……. I used to love to cook, I taught my husband how to make lasagna rolls, a long process that I just cannot attempt to do anymore….

If we are lucky I can remember how to make something, what ingredients we need to have, our lives have changed so much, it just isn’t fair, and really sucks……not just for me, but for them too.

So now here we are, we know what I have, cerebral arachnoiditis, but what do we do about it??

More MRIs, watch and wait, physical therapy, tired of it, I can do the exercises at home for cheaper…surgery…no…..pain medications, more and more and more, I feel like a drug tester already….. nerve stimulation, ugh….. acupuncture… I don’t think my nerves can handle any more needles…. so what do I do…….

“Treating arachnoiditis can be difficult. The area around the spinal cord is delicate, and even minor damage can have severe consequences.

Surgery is possible but not always recommended. Surgery is not always effective and exposes the spine to potential further damage. Even when surgery is effective, the benefits are usually temporary.” Same article….

So here it is….in black and white folks……surgery is possible but not recommended…..

Whatever you do, do not get any more shots…..

John F. Kennedy’s Pain Story


This is a great informational article, written in September, 2012 Practical Pain Management.

Some short exerpts:

The 1962 edition of Dorland’s Medical Dictionary does not even list autoimmune disease.13 The 1965 edition of Current Therapy only refers to “autoimmune reactions.”14 Slowly but surely the medical profession began to accept the fact that the body may actually turn on itself. In contrast to the 1962 edition, Dorland’s Medical Dictionary in 1981 defined autoimmunity as “a condition characterized
by a specific humoral or cell-mediated immune response against the constituents
of the body’s own tissues.”15 By 1989, Taber’s Medical Dictionary succinctly
defined autoimmune disease as we view it today: “Disease in which the body produces [a] disordered immunological response against itself

Pain management practices are now seeing patients with genetic autoimmune
diseases similar to that of JFK’s. Unfortunately, autoimmunity may be
a progressive lifelong disease that produces severe pain, which may become
centralized in the CNS. Fortunately for JFK, he was referred to Dr. Travell
for pain management in 1955. She was undoubtedly the best pain management
physician at the time. Her treatment regimen was comprehensive and
consisted of medication, exercises, and physical rehabilitation. It was the forerunner
of contemporary treatment for severe centralized pain.

Writing in the The Atlantic, Dallek noted that Lee Harvey Oswald killed JFK before the president’s medical ailments could. 1 In fact, Dallek surmises that “the evidence suggests Kennedy’s physical condition contributed to his demise.” On November 22, 1963, JFK was wearing a corset-like back brace as he rode in a caravan of official vehicles through Dallas. Oswald’s first bullet struck JFK in the back of the neck. “Were it not for the back brace, which held the President erect [and not slumped over], the second, fatal shot to the head might not have found its mark,” he concluded.

Despite this anecdote, it is clear that JFK would never have been in that convertible
on that fateful day if it had not been for the skill of his pain physician. Practitioners of pain management as well as pain patients should study the case of JFK. There are many lessons to be learned. Above all, his pain story is one of great will, desire, and discipline
on the part of both patient and physician.


1. Dallek R. The medical ordeals of JFK. The Atlantic.
Dec 2002.
Accessed August 3, 2012.

13. Dorland’s Illustrated Medical Dictionary. 23rd ed.
Philadelphia, PA: WB Saunders; 1962.
14. Lovell RG. Autoimmune reactions. Current Therapy.
In: Conn HF, ed. Philadelphia, PA: WB Saunders;
15. Dorland’s Illustrated Medical Dictionary. 26th ed.
Philadelphia, PA: WB Saunders; 1981:141.

Arachnoiditis article from Medical News Today

Arachnoiditis is a neurological condition that causes pain in the back, perineum (the space between the genitals and the rectum), legs, arms, and feet. Arachnoiditis can also affect a person’s vision, sight, and mobility. Read more:

via Arachnoiditis: Symptoms, diagnosis, and outlook — numerons